SAI | Swiss Association of ichthyosis
Rare Disease Day in Berne 2011
The first conference organised by ProRaris, the new Swiss Alliance, at the occasion of RDDay, has been an overwhelming success.
3rd Meeting of the European Network for Ichthyosis in Birmingham
The UK Ichthyosis Support Group (ISG) warmly welcomed ENI representatives to join with UK members at the 2009 ISG Conference on the 16th and 17th May in Birmingham, and to attend an ENI meeting on the 17th May.
European Network for Ichthyosis Meeting in Copenhagen 2008
The second meeting for European patients associations was held on 15th of may 2008. In the run-up of the annual reunion of EURORDIS in Copenhagen in May, the “Iktyosisforeningen Denmark” invited to a satellite meeting for Ichthyosis in the community centre of Greve near Copenhagen. Vibeke and her family welcomed us warmly.
The foundation of ENI - European Network for Ichthyosis
On September 1st, 2007 the European Network for Ichthyosis (ENI) started in Muenster, Germany.
Representatives of Ichthyosis patients' associations from Spain, Germany, Sweden, Denmark, Belgium, Finland, Switzerland and Italy met in Muenster.
Representatives of Ichthyosis patients' associations from Spain, Germany, Sweden, Denmark, Belgium, Finland, Switzerland and Italy met in Muenster.